The Blues That Bind: Black Women's Centuries-Old Struggle

Written by Miyae Folkes

Mark Rothko

Annie Lee| Blue Monday| 1985

Annie Lee's Blue Monday self-portrait tells a story familiar to many African American women. In shades of blue, Lee's painting transcends decades, etching the pain, strength, and labor that Black women embody simply by being born. Painted in 1985 in Chicago, Blue Monday resonates deeply.

There is something achingly relatable about it. The stress weighing on the woman's shoulders, her neck hung low as if mourning the day before it's began.

Her disheveled clothes draped loosely, unable to bear the weight of her blues. It all feels too familiar, which is likely why it became Lee's most popular work. The faceless self-portrait displays her vulnerability, the sad, weary, defeated expression leaving room for viewers to see themselves sitting at the edge of the bed before or after a long, hard day.

I stare at the painting and see glimpses of my mother. Of myself.

The struggle Black women carry is profound and unending. Century after century, day after day, we live and fight to see another sunrise in a world not made for us. Yet we persevere, but at what cost?

History shows Black women are consistently an afterthought, regarded as less than our White and male counterparts. We sit at a unique intersection of marginalization where neither our womanhood nor our race is widely valued or accepted. For years, we've endured compounded discrimination, centuries of pain, abuse, struggle, and fighting. From girlhood to womanhood, that pain seeps in, leaving lasting impacts.

Professor Parker Dominguez, a social worker and Health care systems expert at USC, describes the experiences of many Black girls and how simply being Black creates a unique process to being socialized.

"It's designed to help your child understand social roles, expectations, culture - how to function within a social system. For parents of color, especially Black parents, racial socialization is extremely important. It means preparing kids to understand racism exists. You are a person of color, you are going to be subjected to this...you have to have a certain level of suspicion or mistrust when engaging with different systems, people, contexts, and situations because they can be potential sources of isms."

Even from a young age, Black girls must carry the burden of their race and what it means to be Black in America before truly living, facing higher barriers than their White peers. A level of hyper-vigilance must be instilled for their safety in a way unmatched for White children. Not only must they know they're Black, they must remember they're girls. This awareness robs them of the innocence most kids cling to longer. It manifests physically and mentally.

Dominguez states, "From a stress perspective, that physiological stress response chronically engaged can lead to wear and tear, premature aging through allostatic load - the degrading of your stress response over time because it's constantly activated. There's research on how that impacts you at a cellular, epigenetic level."

From their earliest days forming sentences, Black girls are hyper-aware of how their identity may shape how they're viewed. Thoughts of anticipated racism - knowing any situation could bring discrimination and prejudice - start young.

This framework many Black girls adopt only worsens in adulthood. Many Black women are underdiagnosed and undertreated for painful symptoms when seeking medical care.

A Georgetown Law study found that as young as 5, Black girls are viewed by adults as needing less nurturing, protection, and support, and as more sexually mature than their White peers. This adultification bias stems from deeply rooted racist stereotypes.

The perception takes two forms: situational contexts where children mature faster and take on responsibilities earlier, such as in disenfranchised communities, or adults perceiving a child's behavior as older. This framework many Black girls grow up adopting only worsens in adulthood.

Pew Research found that 71% of Black women ages 18-49 reported at least one negative interaction with a healthcare provider. Black women also have worse pregnancy and postpartum outcomes, are more likely to die of breast cancer than White women, and have higher rates of heart disease at younger ages.

When race and gender intersect, the healthcare system's shortcomings are stark.

The dismissal of pain and identity at a young age follows Black girls into adulthood, often manifesting in the health care system historically unequipped for women or Black people, much less Black women.

"I realized at 15 that my body wasn't functioning normally, and my journey for answers started," said Kylie Foster, 23, first diagnosed with polycystic ovary syndrome (PCOS) at 16 after severe stomach pains from ovarian cysts.

It took over a year for Foster's male gynecologist to take her painful, excessive periods seriously instead of writing her symptoms off as nothing more than a bad period. Even after diagnosis, Foster’s care remained lackluster.

"The process was very blunt: diagnosis, prescription, dismissal," she said. "As a teenager, I didn't have the tools to ask follow-up questions. There was no referral to a therapist to help with PCOS' mental health effects. In a way, the experience of being diagnosed with PCOS as a whole deterred me from visiting providers in the future.”

Dr. Burrs is one of the few Black OB/GYNs in her town after completing her residency at Stanford University.

"Black women would seek me out because there are no Black physicians, and they want somebody who they don't have to explain everything to or somebody who might make me and my family feel more comfortable," she said. "My practice was as Black as it could get because people would come find me from far far away."

Black women are better suited seeking other Black female medical providers due to shared cultural competency that White providers cannot provide, research shows. Providers who share sociocultural contexts with Black women have been linked to better patient outcomes. They tend to communicate more effectively, build trust and create satisfaction, which may contribute to improved health.

However many Black patients do not have the luxury to choose their doctor. Only 5.4% of U.S. doctors identified as Black, and various insurance inequities further limit doctor selection.

Dr. Burrs' insights extend beyond the surface level. She recognizes the reluctant patients—the ones who check in and out, seemingly disengaged. It's easy to label them as non-compliant patience, but Dr. Burrs looks deeper. "Why do people behave that way?" she asks. Implicit bias, historical trauma, systemic mistrust—they all play a role. Patients carry burdens beyond symptoms. Their reluctance is a survival strategy against a flawed system.

She vividly recalls when a colleague dismissed a patient's pain level, stating, "She said she's in a lot of pain, but I don't think so." While such statements may be commonplace when doctors are frustrated or fatigued, Dr. Burrs emphasizes questioning assumptions. "When she says that, if everybody nods in agreement, assuming the patient is exaggerating, that becomes the mindset," she explains. "But if someone challenges that—asks, 'Are you sure?'—it changes the dynamic. We're considering other perspectives."

Having physicians who share patients' cultural backgrounds can bridge this divide, Dr. Burrs says. They bring firsthand knowledge of cultural norms, historical context and socioeconomic factors. They understand why a patient might hesitate to follow advice or express mistrust.

"People often fail to step outside their own lens. They don't actively try to see situations differently," she explains. When providers can't fully comprehend patients' lives, gaps emerge.

Dr. Burrs firmly believes diversifying the healthcare workforce can revolutionize these conversations around patient care and health outcomes. Providers from different backgrounds bring a nuanced understanding of the factors influencing patient behavior—whether cultural norms, socioeconomic challenges or historical mistrust.

"A lot of patients harbor mistrust toward the healthcare system," she observes. "They don't necessarily believe their doctor has their best interests at heart...having a diverse team helps bridge that gap."

Many issues were linked to racism and Black women's fear of medical professionals due to a long history of abuse and dismissal.

Dr. Sims, widely known as the "father of gynecology," performed surgical experiments on enslaved Black women without anesthesia or consent, Dr. Burrs notes.

"The 'grandfathers' of OB/GYN were horrible misogynists," she says. "They did ridiculously terrible things...figuring out how to do surgery, and they did it on women who were not anesthetized and who could not consent, and this happened over and over...some of our primary instruments are even named after these people. Most physicians have no concept of how horrible our history is."

A dark history of medical racism persists in the U.S. Despite Sims' misconduct, his statue still stands at the Alabama state capitol in Montgomery.

The Black woman's experience is unmatched. In attempting to care for their bodies, an opportunity many lack, Black women face immense hurdles in getting their pain addressed. An NIH study found 94% of Black women patients had poor experiences with medical professionals, especially OB/GYNs.

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According to Dr. Burrs, "Most women in general can tell you about a bad experience they have had at their OB/GYN's office.” These experiences range from doctors not listening, being rough, "fat shaming," or making inappropriate comments about a patient's sexual history or family planning decisions.

Dr. Burrs notes these issues are particularly prevalent among Black women, stating, "The stories just go and go and go."

Dr. Burrs strategically asks patients about past experiences, knowing many feel distrust. She wants patients to have a platform to safely vocalize worries, fears or bad encounters, an opportunity few Black women are provided.

"Maybe she never told anybody what happened that day, you know? And maybe she needs somebody to say ‘Yeah, that was messed up, that should not have happened to you. I am so sorry," she explains.

She elaborates, "I would say all the things that I see, in a day, I could probably check 90% of them on any one Black patient because they are not kind to us.”

Dr. Burrs acknowledges these negative experiences can have lasting impacts on Black women's trust and willingness to seek follow-up care. She makes an active effort to curb the fear and anxiety her Black patients have by being human first.

However, as she entered the healthcare system as a patient, Dr. Burrs witnessed these disparities firsthand. While preparing to deliver her first newborn in 2002, she faced a near-death experience at the hospital where she worked and served as department chair.

Dr. Burrs went to the ER with dangerously high blood pressure, a symptom of new-onset hypertension. Despite the severity, the attending physician wanted to send her home for outpatient testing rather than address the immediate emergency.

"My blood pressure is 200 over 150. I have a headache, and this is all of a sudden, and you want me to leave?" Dr. Burrs recounted.

Dr. Burrs' friend, also an OB/GYN, had to advocate on her behalf, questioning why the doctor was not attempting to lower her blood pressure. Only after they insisted they would not leave the hospital until Dr.Burrs head was scanned did the doctor finally agree to necessary testing, which revealed concerning findings.

These experiences, from a respected provider and patient, illustrate the systemic biases and disparities Black women face.

"I felt like I was not well treated and I felt like I needed to advocate for myself more than I should have had to," Dr. Burrs stated.

As she explained, "If I was the doctor evaluating me I would say ‘We have nothing to gain by you staying pregnant and we have everything to lose by you going home and getting sick.’ So I would have either kept me another day or I would have delivered myself right now."

"Why would I go home?" she questioned. "By the time I get back, 48 hours later, I might have been sick. My baby might have been really, really sick."

As Dr. Burrs noted, the mindset seemed to be, "Here is a 50-year-old Black lady with high blood pressure and a headache that happens." However, she pointed out this was a new onset and severe. "You should do something about that," she said.

Dr. Burrs' experience corroborates data showing "our [Black women's] outcomes are worse unless certain factors are in place to protect us." She attributes this disturbing trend to systemic bias permeating society.

Bias knows no socioeconomic bounds. As a respected OB/GYN, Dr. Burrs witnessed stark racial disparities in maternal healthcare. In medical school, data showed "poor outcomes for Black women" persisting regardless of "education and economic status."

"I can understand that poor women would have poor outcomes because they have less access, but why would it be that a Black woman who is wealthy and educated would have a less chance of survival than an Asian woman who is educated and wealthy?" she said.

Dr. Burrs "almost died," during this process. She emphasized the disparities were "just like the report said."

An educated Black woman was not immune - medicine reflects the biases existing throughout society.

Ida Shibiru, a University of Oregon pre-med graduate, faced a slew of dismissed and belittled health issues from White and male doctors. Shibiru has Type 1 diabetes, making her journey to deserved healthcare even more arduous. The aftermath of navigating her diabetes has taken an emotional toll. Being a Black woman has compounded her view of marginalization.

As an 11-year-old battling strep throat, Shibiru vividly recalls a doctor dismissing her pain: "It does not look like strep." But the book-smart Shibiru, unwilling to miss school, advocated for proper testing that confirmed her diagnosis. Yet the experience left lingering awareness of how easily concerns could be brushed aside.

In college, Shibiru faced cramps, hormonal fluctuations and unexplained vomiting. She repeatedly visited the ER, where doctors found minor issues but failed to connect the dots. Each time, she was told her symptoms were "fine."

Research proves Black girls and women are prone to being underdiagnosed or misdiagnosed across various mental and physical conditions. This underdiagnosis seems to consistently stem from provider biases, lack of culturally competent care, mistrust due to historical and ongoing medical racism, and insufficient research on how conditions may present differently in Black girls and women.

This forced Shibiru to become her own "case manager," tracking medical history and test results to advocate for needed care - a pattern many Black women succumb to for their health.

The effects of being a Black woman with health issues extended beyond the doctor's office for Shibiru. As a working professional, Shibiru's physical health problems prevented her from being able to take time off or step back from work when she was really sick. She did not receive grace, understanding or accommodation from her White peers and managers to take the necessary time off when her health required it. She needed to manage her health issues in the workplace.

Yet, as a Black woman, she carried an additional burden. The awareness that her grace period was shorter than her peers’ weighed heavily on her. While Shibiru's first impressions were always positive, the underlying bias lingered. The presumption that Black women were lazy or making excuses haunted her every step. Taking a sick day became an ordeal for Shibiru. The anxiety was palpable. How could she express her need for rest without being dismissed? The fear of judgment and inconvenience gnawed at her. As a Black woman in the professional world, she knew the stakes were higher. The delicate balance between asserting her needs and avoiding negative consequences weighed heavily on her mind.

"Many Black women in the professional world were hyper-aware of internal bias," Shibiru said. "Even when first impressions were great, I knew there's a level of awareness that the grace Black women are given is much shorter...and the presumption that Black women are lazy or making excuses [caused] the worst anxiety when trying to let people know I need a sick day or a moment."

Shibiru's story reveals the hidden toll of bias. It’s not just about physical health; it’s about mental and emotional well-being. When Black women fight for recognition, understanding, and basic consideration, they carry an invisible load.

According to McKinsey, Black women experience more microaggressions and disrespectful/othering behavior than other groups of women - three to four times more likely than White women to face such comments and behavior. Intersectional racial and gender biases create disadvantages and extra scrutiny that Black women must navigate corporately. Their talents are underutilized while facing disproportionate discrimination and a lack of inclusive leadership efforts. Black women carry an "additional burden" of bias and shortened "grace periods" before facing stereotypes about capabilities and work ethic.

For Shibiru, it's never just one bias. Shibiru explains that the challenges she faces are a combination of the ‘Black thing’ or the ‘woman thing’; sometimes it's she's Black and a woman." She describes the difficulty of feeling like she doesn't "belong somewhere" or that the systems in place are simply not designed to support individuals who share her identity.

Then there's the intersection - being both Black and a woman. But it compounds further based on background. Navigating the intricate tapestry of being both Black and a woman feels like walking a tightrope - belonging, yet nothing tailored for her. The realization: The system isn't designed for Black women.

When discussing racism, the conversation often focuses solely on skin color, but Shibiru knows there are extra layers - subtle biases compounding the struggle. For Black men, it's emasculation. For Black women, it's hypersexualization - an exhausting dance between invisibility and objectification. Racism intertwines with gender bias, creating unique challenges.

"Dang, I am Black and a woman. This system is not set up for Black people nor women. I am taking the brunt of both," Shibiru laments.

However, Shibiru's story also speaks to the power of community and allyship. She emphasizes that it was often other Black people, particularly Black staff advisors and Black women, who provided the most meaningful support and understanding during her most difficult moments.

"What helped in those situations," she reflects, "It was other Black people that always helped."

Jasmine Robinson|Black Bird

Genesis Abril, 24, is familiar with her pain being ignored from a young age. She has dealt with hemiplegia her whole life, yet did not realize it until college when finally diagnosed after years of symptoms like paralysis on one side, intense body pain and nausea.

"I remember walking back to my dorm after rehearsal and one side of my body completely went out," Abril recounts. This spurred medical investigation into frequent headaches she experienced for years.

According to a NIH study, 63% of Black women say their pain concerns or symptoms were not taken seriously in interactions with doctors and other healthcare providers. The invalidation occurs in many settings for Black women - work, personal relationships, the legal system, etc.

Prior to diagnosis, Abril admits, "I had just gotten so used to pain being a normal part of my life, I did not prioritize it anymore, it just was. I thought, well maybe it is not even just me that this happens to, maybe it is a normal thing everyone goes through, and I just carried on like that."

Similar to Foster and Shibiru's stories, after finally receiving a diagnosis over a decade later, she was met with callous and blunt care from medical providers.

"When this doctor came into the room she introduced herself to me," Abril stated. "The first thing she said after the introductions was 'You know you might have to get brain surgery, right?'"

Naturally, Abril was startled by this sudden, tactless statement devoid of context or a compassionate approach. "I do not know where that lapse in communication came from, but there could have been a better way to broach the conversation," she stated. "I know that is not the best way to introduce yourself to a new patient, or a way to relay difficult information."

The constant dismissal of her pain from healthcare professionals impacted Abril's internal messaging about her physical and mental states.

"I guess it is really not that bad. I should just keep living" Abril sighs. This self-minimization adversely impacted her health perception, leading her to believe enduring pain was normal.

Her hemiplegia journey was particularly challenging. At one point, she experienced pain every day of the month. Initially prescribed medication reduced Abril's pain to about 14 days monthly, but when the medication stopped working her pain increased to 21-25 days monthly. Abril's neurologist responded, "That is great, that is still good for you because you have been dealing with 30 days a month of pain, so you can handle 21 days." This left Abril perplexed about how to internalize such a response.

Abril's experiences extend beyond migraines. She recalls severe childhood menstrual cramps and a doctor saying future childbirth would be easy because of them. This comment not only the adultification of a young girl, but led Abril to believe from a very young age she was supposed to endure pain because one day she would have children.

The study highlights how the "strong Black woman" stereotype encourages physicians to view Black girls and women as more willing and able to push through distress, minimizing reports of chronic pain.

This mindset carried by professionals not only physically affects Black girls and women but creates a mental tax.

"I just think that we are often forced to do more and endure more and our pain should not come easy," said Abril.

For years, Abril hyper-focused on managing just the physical manifestations of her chronic neurological condition. "I was not thinking about the mental impact chronic pain and conditions were having on me. It was all about physical, like my physical state," she recalls. Her energy went into following doctors' recommendations like "this is how you should exercise" to regain bodily control.

However, this single-minded approach took a major toll. "I stressed myself out to no end, just trying to get control of something that I have realized I just do not have that much control over. And so I ignored my mental health. And that, as the years went on, proved to not be great."

For Black women like Abril, the quest for equitable and culturally competent healthcare is an ongoing struggle. Time and again, she has found her racial identity and the realities of being Black in America dismissed or minimized by medical providers.

Abril recalls two instances, one in 2014 and another in 2020 when the killing of unarmed Black men and subsequent movements addressing racial inequities significantly impacted her stress levels. She says, "I am always told to try to keep my stress down because of how stress can impact the body in different ways. Then I am like, yeah, that is like my dream situation, but I can not live it."

Despite these highly stressful, traumatic events with real mental and physical health impacts for many Black people, she was simply advised to "to keep stress down." The disconnect between the advice given by healthcare providers and the realities of living as a Black person in a racially charged environment did not resonate with Abril.

Part of the problem, Abril realized, was the fragmented care she was receiving. "If you have a question about your mental health, it is like, 'Oh no, you are in the neurology department, you have to make an appointment with psychiatry or get a psychologist in order to uncover those issues.'" The siloed approach prevented holistic treatment of both her physical and mental needs.

It was not until starting graduate school that Abril gained awareness of how crucial socio-cultural factors are for overall health as well. "What would have been missing since I was a child was that holistic care...How does my race impact my health? How does my culture and my ancestry impact my health? Those are things and I actually started having not until my first time in grad school."

Surviving as a Black woman is no small feat. The research paints a stark picture - Black women earn the least, face some of the highest rates of stress and oppression, and carry the highest risk of maternal death. Yet in the face of these realities and relentless barriers, Black women like Foster, Shibiru and Abril persist with unwavering resilience. Continuing to push forward, advocating for themselves and their communities despite systems and institutions in place that have historically devalued their identities. Their perseverance in pursuit of equitable healthcare access and holistic well-being serves as a powerful testament to the work required to merely survive as a Black woman in America.